In honor of their son, Nile, who lost his life to a bacterial infection, Ty and Carole Moss established a coalition of friends, entertainers and advocacy organizations to end unnecessary deaths from health care-associated infections.
From his motorized wheel chair, Bill Turley waves to friends along the hallways at the Villages of Southern Hills, a long-term care facility and his home in Tulsa, Oklahoma. Family pictures and musical instruments adorn his room there. He talks about his love for music and his respect for the English program at Oklahoma State University, his alma mater. He serves as the president of the Villages resident council. He enjoys writing and Internet surfing, he plays multiple musical instruments, and he rides an oversized trike in the courtyard of the home.
Charles Pascale, a 67-year-old resident of East Brunswick, N.J., was diagnosed with diabetes in the early 1990s. In 2005, he underwent bypass surgery and was re-hospitalized six times in 2010 and two times in 2011 and 2012. After many tests and procedures, he was diagnosed with congestive heart failure, atherosclerosis, End Stage Renal Disease, mild stroke, various gastrointestinal issues and an irregular heartbeat. Mr. Pascale endured several amputations and continues to receive dialysis. Through it all, he has remained positive because of the collaboration he has witnessed among his health care providers, as well as his own integration into the care team. This is his story.
At a Salt Lake City, Utah-based Learning and Action Network event organized by HealthInsight, the Quality Improvement Organization for Nevada, New Mexico and Utah, mother and son team Vicki and Kevin Whiting shared with a crowd of more than 150 medical professionals their health care story. After a long journey and a mother finding the heart to use her voice, Kevin’s true diagnosis was discovered, and he received a surgical procedure that saved his life. The Whitings’ story exemplifies how listening is the heart and soul of patient-centered care.
Virna Elly, a patient with Type 1 Diabetes and Chronic Kidney Disease, tells how becoming her own spokeswoman led to a life of educating others with chronic conditions and inspiring them to leverage every available resource to create a healthier life. The roots of her work in patient advocacy are in her childhood.